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How Can Parents of Special Needs Children Ensure Long-Term Care Through Estate Planning?

How Can Careful Estate Planning Protect Your Special Needs Child?

Estate planning for a child with special needs requires thoughtful preparation. You want to ensure your child has lifelong stability, care, and access to vital resources. Working with an attorney experienced in special needs trusts helps you build that protection. With a well-structured plan, you can feel confident knowing your child’s financial and personal needs remain secure no matter what the future holds.

What Is a Special Needs Trust and How Does It Work?

Many individuals with disabilities rely on government programs such as Supplemental Security Income (SSI) and Medicaid. These programs limit income and asset ownership for beneficiaries. A special needs trust allows you to set aside funds for your child without affecting eligibility for essential benefits.

The trust holds assets under the care of a trustee, who uses them for supplemental needs like therapies, education, transportation, or recreation. Because your child doesn’t directly own the funds, the assets aren’t counted for SSI or Medicaid. This structure keeps benefits intact while improving your child’s quality of life.

Types of Special Needs Trusts

Selecting the right trust depends on your family’s goals, funding sources, and your child’s circumstances. An estate planning attorney can help you choose the best option:

  • Third-Party Special Needs Trust: Created and funded by parents, grandparents, or other relatives. The funds don’t count against your child’s benefits and can pass to other heirs later.
  • First-Party Special Needs Trust: Funded with your child’s own assets, such as an inheritance or legal settlement. Any remaining funds typically reimburse Medicaid after death.
  • Pooled Special Needs Trust: Managed by a nonprofit organization that combines investments from multiple beneficiaries while maintaining separate accounts. These trusts are cost-effective but involve management fees.

Other Estate Planning Tools for a Child With Special Needs

A comprehensive plan includes more than a trust. Parents should also prepare supporting documents that guide future guardians and preserve benefits:

  • Letter of intent: Describes your child’s routines, medical needs, and preferences for future caregivers.
  • Guardianship or conservatorship: Names a trusted person to make personal and financial decisions when your child cannot.
  • Powers of attorney: Authorizes someone to manage healthcare or financial matters when necessary.
  • Life insurance and ABLE accounts: Provide supplemental funding for care and living costs without disqualifying your child from public programs.

Why Start Estate Planning Early?

Early estate planning allows you to coordinate benefits, assets, and guardianship before emergencies arise. It also reduces stress on your family and ensures legal documents remain current. As your child’s needs change, review the plan regularly to confirm it still aligns with government regulations and family goals.

How Metropolitan Law Group Can Help

Planning for a special needs child requires experience and empathy. The attorneys at Metropolitan Law Group help families across Arizona, Minnesota, and Wisconsin establish trusts, guardianships, and care plans that preserve benefits and protect your child’s future. Call 480-409-8200 in Arizona or 612-524-9414 in Minnesota and Wisconsin, or book a complimentary 15-minute Discovery Call with our experienced staff today.

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